🍂🍁 Unsleeping 🏳️‍🌈 ♿ @mosscaller.bsky.social

4 days ago

Give yourself some grace.

#disabled #depression #chronicfatigue #chronicallyill #fibromyalgia

( ID: Chronic fatigue weaves its way into everything. People love to tell disabled people they'd love to rest as much as we do, but they fail to understand how tired we are while we rest. We are not relaxed, we are generally pretty miserable, either from pain, irritability, or fatigued - which bleeds into every aspect of your life, being too fatigued to get up off the couch means that you're too fatigued to get to the cupboard to pull out pans to attempt to start cooking.

The steps hidden within steps that are required to do a lot of tasks related to being a "functioning adult" are daunting, there are often way too many steps necessary to make "Simple" foods or do "simple" chores for disabled people to accomplish these tasks. Chronic fatigue often means that even waking up from a nap or night's rest requires time to adjust to and power through.

Waking up is a process for me. I'm often o more alert and awake hours after I've woken than I am right after doing so. Caffeine does not help fatigue - at least not at safe doses, for me, anyways. Many days the act of moving from my bedroom to my living rom is too much. Taking dishes to the sink can be too exhausting. I have began falling asleep in front of the kitchen counter while standing because I realize the amount of steps required to clean the counters, or do the dishes, or prepare a meal that all of my energy instantly bleeds away.

It's okay if you feel this way too. I have been dealing with chronic fatigue my entire life and it cost me my best paying job. I lost my ability to work because of it. It's not just you being "sleepy", you are genuinely too exhausted o function. You do NOT have the energy levels other people do, and that's okay. It's okay to let yourself be tired sometimes and address that instead of trying to pretend you're not tired.

I with you good luck. You are loved. )

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