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Belasco

@belasco.bsky.social

1088 Followers

659 Following

Queer disabled nerd trapped in Texas

Background photo by @janetrass.bsky.social

  1. It’s really about the rule you’re breaking. Will breaking it violate your personal ideals/morals? What are the real (not imagined or guessed at) consequences of breaking it? Some rules are guidelines in practice, some exist to aid the social contract, & some are simply wrong & need to be challenged.

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  2. #SevereMEAwareness #MyalgicEncephalomyelitis #pwME August 8 is International Awareness Day for Severe and Very Severe #MyalgicE. Let us not forget those who have died from M.E. and those who are housebound and/or bedbound, hidden from public view, suffering without proper diagnosis or healthcare.

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  3. Me: intake appt went real well!

    Brain: did it, though?

    Me: we have a plan to move forward & learn things!

    Brain: yeeaahh, wanna bet all your test results come back “normal”

    Me: I’ll just be over here in the corner reliving every single time a dr was an ass

    Brain: my job here is done

    #neisvoid

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  4. She said the big difference is that we don’t necessarily snore, or snore much - instead apnea presents as insomnia. Which I thought was very interesting since increasing insomnia is a symptom of LC. She also said that the muscle exhaustion/weakness from LC applies to the muscles that make us breathe

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  5. -MCAS & POTS were mentioned with concern by the dr before I brought up either of them -I saw the Dr who is the head of the program, she’s a pulmonologist & sleep expert -I was treated w/respect 😱 It’s the Baylor College of Medicine’s post covid clinic if anyone’s curious.

    *assigned female at birth

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