I survived the intake apt for the long covid clinic I got in to. An hour of mostly talking starting 3.5hrs before I normally even consider waking up, I’m exhausted & curious what the PEM will be like. They didn’t seem happy w/my meds, but I am not starting over to make it easier for them. 🧵 #pwlc
Interesting bits: -There’s a post covid registry that I opted into for research purposes -They’re getting NIH funding to study post viral illness w/fatigue -Sleep apnea is common in LC patients & shows up VERY differently in AFAB* people & there’s a way to test at home ->
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Would love to hear more about the sleep apnea showing up differently (when you get some energy back).
And congrats on making it through intake appt 🎉 enjoy some well deserved rest!
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-MCAS & POTS were mentioned with concern by the dr before I brought up either of them -I saw the Dr who is the head of the program, she’s a pulmonologist & sleep expert -I was treated w/respect 😱 It’s the Baylor College of Medicine’s post covid clinic if anyone’s curious.
*assigned female at birth
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Sounds like you’re in the right place, and keeping my fingers crossed that the funding for the clinic and its research remain steadfast.
Your involvement comes with a high physical demand on your body, and I appreciate you sharing your health journey here. 💙
