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@onechick.bsky.social

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  1. I rarely post personal things. But I need to talk about my 4-year-old niece, Hope.

    She has a rare disease. A drug called elamipretide has helped her survive.

    But the FDA recently denied its approval.

    Now, her health hangs in the balance.

    Please share her story & urge the FDA to reconsider. 🧵

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